Drops of Water

Current Thoughts

She’s a Marian Girl

I have forgotten how hard it was the first time for Lolo to get back on her feet. She is doing so well. It amazes me some days. But, she is tired; beyond tired each day. She started back to school and I started back to work. It has been a whirlwind. In addition to...

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Our Song

We are movning Lauren along towards meeting her goald to be ready for school. She her surgery on Friday, by Dr Raynor to have the central line removed from her chest. It was a pretty quick operation, but the surgical staff took a picture with Lauren. We are hoping she...

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Oh My My My!

Lauren’s appointments this week went very well. Her counts are continuing to rise. She is still anemic and her platelets are low, but they just blipped over the mark of being critical. Her hemoglobin climbs and then it drops again. She is still anemic, but does not...

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Tied Together With A Smile

Lauren had her blood counts checked on Thursday and they were trending in the right direction. She is starting to eat more and sit up more. Yesterday, she even had her friend, Emmy, over for dinner. Emmy stayed and watched a movie and then they went out to Red Mango...

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The Lucky One

The Lucky One

I have been up for the last couple hours trying to research a few things online. Jonathan was up too and got a snack and went to bed. Lauren couldn’t sleep so I rubbed her back for while. It would seem like the adjustment home would be absolute bliss. There is no...

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Fearless

Fearless

On Monday, July 25th, 2016, Lolo left the hospital and came home! It didn’t even seem real that she was really done and ready to be back at home. I couldn’t believe it. Today, it is still soaking in. I threw out that date a while ago saying that was when we would come...

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Worthwhile Fight

Tonight, Lolo is resting while Phil reads.  I finally took a break to write to let you know that Lauren is doing better.  She is still in a lot of pain.  This week has had its ups and downs, but the trend is up and we are thankful for that.  So much has happened. ...

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Clean

Clean

It is 0200 in the morning on Day 20. I was so excited this evening because we had to move rooms so they could deep clean Room 613 and so they let us move to Room 607. Room 607 aka "the giraffe suite" was where Lolo was for most of her stay during 5th grade. It is a...

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Fifteen

I stayed awake last night until midnight just so I could write "15" on the hospital whiteboard. We are only half way through today. Today she is stable. No temperature last night. She was able to manage her pain. It doesn't go below an "8" and Dr. Ford said it...

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Untouchable

Lolo is stable. We are still in Room 613. It is a miracle we didn't end up in the PICU over the last few days.Lolo just went through a critical scare and is stable right now. She has a big fight on her hands for the next couple of weeks. I cannot sing Minnie...

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